How I Forced the VA to Give Me an Autism and ADHD Evaluation
Forty-five minutes. That is how long it took a VA provider to decide my entire neurodevelopmental profile.
He told me I did not have ADHD. Then in his clinical notes—in writing—he stated there was not enough information to make a full determination. Two contradictory positions. One clinician. Forty-five minutes.
And then he tacked on what turned out to be the most revealing line of all: “Given non-binary gender identification, results and interpretations are given with limitations/caveats on this instrument.”
Let me be clear: this is clinically negligent. The DSM does not state that non-binary or otherwise gender-diverse adults have invalid ADHD presentation. It states that men are more likely to be diagnosed at a young age. That is it. That is the entire caveat. To invent a broader interpretive limitation from a single epidemiological observation is not clinical caution. It is a lazy heuristic dressed up as rigor.
The Second Opinion That Was Not
I pushed for a second opinion. What I received was a peer review. A second VA provider looked over the notes and agreed with the original assessment. Without ever consulting me. Without a single new word of data from the person actually being evaluated.
A peer reviewer for a research paper does not get credited for the research. Neither shall a peer review count as a second opinion in clinical practice. A peer review assesses methodology. A second opinion reassesses the patient.
I told them this distinction matters. They did not dispute it.
The Consent Violation
I revoked consent from both providers. The evaluating provider. The reviewing provider. Consent is not a suggestion. It is a boundary.
The reviewing provider saw fit to call me to admonish me. She recommended I pursue personality testing. When I informed her I had revoked consent—again—she had already crossed a line by calling me in the first place. Consent revocation is absolute. There is no “concerned clinician” exception that overrides a patient’s right to cease participation.
The Escalation
So I filed state-level complaints against both providers. Contemporaneously, I filed a clinical appeal to the Chief of Staff, informing them of the ongoing investigations, my documentation of their care failures, and my demand—a demand, not a request—for an AuDHD evaluation through community care.
I CC’d Congress. I CC’d the VISN.
You see, the VA is not broken. It is functioning exactly as designed. Bureaucracies do not respond to clinical concern. They respond to exposure. The state-level complaints created regulatory risk. The congressional letters created political risk. Together, they created the only thing the VA cares about: a calculated decision that compliance is cheaper than evasion.
Then they folded. A full neuropsychological evaluation through community care arrived. Inclusive of both Autism and ADHD. Everything I had asked for, delivered only after I made ignoring me more expensive than helping me.
The Aftermath
The state-level investigation is still ongoing. The investigator told me on our first meeting, “I have a lot of questions, but not for you.”
There is a dark humor in that. The VA system spent months telling me I did not qualify for adequate evaluation. I spent months making it clear I would not accept the answer. The system responded to the threat of accountability, to the threat of documentation, to the threat of someone who refused to treat a hallway denial as a final verdict.
It was never about my diagnosis. It was about the diagnosis being earned through proper process. What they do is what they do everywhere: short-circuit the work, deny without consultation, bury the person in administrative friction. The person who survives that friction is the one who learns to make the friction work for them.
You do not need permission to demand proper process. You do not need a lawyer, though one helps you read the code. You need documentation. You need jurisdictional overlap—the state board, the congressional office, the VISN, the Chief of Staff. You need to keep pushing until the institution calculates that compliance is the cheaper option.
This is how you make a system do its job. Not by hoping it will. By making it costly to ignore your request.